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    Ramblings Uncategorized

    Stability

    Yesterday, I had another MRI. I get them every 8 weeks, yay me. NOT! I really don’t mind them, other than the radiation and the contrast they pump into my veins. Nothing like more toxicity into my body. I have gotten so used to them other than I feel like I’m going to start setting off alarms at some point and possibly become a magnet and find that I have to pry myself off of stainless steel appliances and cars.

    There was a very tiny progression of the flare on my brain that my Neuro-Oncologist has been monitoring for over a year, but he doesn’t think it is tumor growth, so I have shared that I had a stable scan with everyone and no treatment is needed at this time. This was great news. I am just beginning to feel somewhat normal, well, my new normal, which I’m grateful for that. I’m not having as much pain in my joints and even though I would tell people that I am not in much pain, my friend told me, yesterday that it was obvious especially when I had to sit or stand up or walk or basically breath. I guess there are some things you can’t hide.

    I talked to the doctor about the seizures whether they were actually seizures or mini-strokes because when I have them I lose function of my right hand, my lip goes numb and twitches and the right side of my face goes numb and droops and I drool. When I write that I drool, I resemble those sexist cartoon characters from the 1940’s who lose all bodily functions and drool over some big breasted, bootylicious dame who walks by. My speech slurs and I have a hard time speaking, but I’m aware of it all. I can usually feel it coming on and lay down the minute I feel that sensation. It lasts a long time and I feel very shaking at night.

    My N.O. suggested that I increase my dosage of one of the anti-seizure medications and he feels like these are Focal seizures that I am having. Just to warn any of you if I don’t seem like myself it’s because of the medication and will hopefully resolve in a few day or weeks.  My friend who has Epilepsy summed it all up in these few words, “it feels like your brain is going in slow motion”.  Also, I don’t know how it will make me feel, but I took the extra dose, last night I didn’t go to bed or awake during the night shaking.

    I am working on managing my stress.  I’ve had to walk away from some stressors in my life and that is very difficult for me. I am also working on my anxiety of the seizures and I have started a bedtime routine that seems to be working for me.  I have always had issues sleeping. For those of you who are great sleepers, I would appreciate any tips you can give me.  I cannot take Melatonin. I hope Tennessee legalizes medicinal marijuana so that I can take fully extracted CBD to help me sleep (sleep deprivation can induce seizures) and some research shows that it can shrink tumors. Maybe I’ll consider moving to one of the 33 states where it’s legal.

    My family has several exciting things coming up. I’ll share those at another time, but for now, this is very exciting.

    Thank you all for the continued love, support, encouragement, rides, listening ears, and treating me like I’m not an invalid. I feel like I’m getting healthier every day and it’s true what they say when you have a great support system, no one fights alone. My corner is so big we need a boxing ring the size of two football fields.

     

     

  • Uncategorized

    Two Years

    Anniversaries can be wonderful, upsetting, painful and so many other things in between. Today, February 16th marks two years since my Grand Mal seizure when I was backing out of the…

  • Recommended Books

    Recommended Books

    I highly recommend these books for developing healthier living physically and emotionally, inspiring stories, positive thinking and some miraculous occurrences.  Knowledge is power.  Be well, my friends.…

  • Uncategorized

    Newly Diagnosed GBM Survivors

    I have survived 23 months and it has not been a smooth sailing ride, however, I’m alive. I’m grateful for my life. I laugh daily. I have hope. I travel. I…

  • Ramblings Uncategorized

    It’s Not Easy Being Green

    Green juices, dark green, leafy vegetables, wheat grass powder, spirulina powder, Artemesia capsules, and seaweed are some of the main staples in my daily diet. The task of washing, preparing, and…

  • Inspiration Ramblings Uncategorized

    One Year

    I’m just passed the one-year mark, I hate to call it an anniversary of my craniotomy resection, which was February 27, 2017.  I remember that day so clearly.  I’ve had my…

  • Ramblings Uncategorized

    Emotions

    Wow, I’ve been an emotional mess off and on all day.  I guess it really got to me, yesterday when an exterminator came out to give me an estimate on our…

  • Ramblings Uncategorized

    Thankful

      It has been a very eventful week: Monday – Labs and infusion (my dosage has been cut in half due to severe pain in my joints, tendons, bones, and muscles). …

  • Uncategorized

    Cliffs Notes

    I feel like there is so much to update, but I don’t want to write a novel.  Here goes with the Cliffs Notes: My infusions of Avastin and every 42 days…